So just when I adjust to Canyon being in the hospital another doctor says he can go home early. On Wednesday I am at he hospital and Dr. M shows up. He asks what I understood of the test results and plan. I explained the whole deal and he looks at me and says, “how does Friday sound?” I freak out. I explain that he can’t mess with me and that he has to be sure, blah blah blah. He basically promises me that we are going home. I dance. Yes, dance. I danced for him. I danced for the nurses. I danced all the way down the hall. What happened to the woman who said she wouldn’t get excited until he was actually in the car? She jumped out the window so the insanely optimistic woman could take over.
Today we have the monitor training and holy crap is that a devil machine. It is so freakin loud. And ridiculous. Fine. Whatever. We will do whatever it takes to take him home. I see Dr. M and he says we are still on track for getting out by noon tomorrow. I see him later and ask if it’s ok to increase Canyon’s feeding because he seemed hungry. He said, “what would you do tomorrow when you are at home?” I am convinced we are finally going to be bringing Canyon home.
So the nurse and I went over the discharge check list to make sure we have everything complete for tomorrow. The last thing is to get two prescriptions filled. One for vitamins and one for caffeine which is for his lungs. Sure he’s been off the caffeine for about two weeks but they wanted to send him home on it just in case. I take it to Walgreens and go home to walk Lilo. Walgreen’s calls. The insurance company won’t cover the caffeine. It’s $1300 dollars a month. WHAT??? Of course the insurance company folks are gone for the day so I go to the doctors. I had heard that the drug was kind of a “just in case” and was wondering if it was absolutely necessary since we were on monitors. I get the main guy who basically scolds me about Canyon getting out on Friday because he wanted him to stay until Monday and retake the pneumogram and acts like I somehow convinced Dr. M to release Canyon. I was a bit perturbed at the suggestion and explained that
A. I didn’t ask for the early release-it was offered to me
B. We weren’t having another pneumogram because the insurance company wouldn’t pay it
C. It’s only 2.5 days early! How much was going to change?
So he tries to guilt me and kind of makes it clear he’s going to try to convince Dr. M that we need the 2.5 days or whatever. I explain that if it costs me $1300 to get my kid the hell out of there I will pay it. For the first time in 7 weeks I am assertive, direct and obviously frustrated. We hang up and I proceed to freak out in the “I am pissed off at being jerked around again” way. The nurses all agree with me. Canyon is fine and we should go home.
So we are preparing for a potential battle tomorrow. War with the insurance company, war with the doctors. I may have to get all Code Grey on them. What’s Code Grey? I learned that a hospital Code Grey means that a patient or visitor is getting violent or out of hand. Ever since I found that out I would tease the nurses that I was going to go “all code grey”. They were teasing me about it tonight. Oh yeah. If they try to keep him longer they are really going to need to show me some medical reasons why and not this vague, really makes me think they just want our money crap.
But on a good note they dropped his little hospital hat on the ground which means we get a new one. Justine had just restocked the cart and found this one…
I bet Kristen and Dawn like that!
Tags: Uncategorized by laurie
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